Videos from the 2017 CFS/M.E. Research Collaborative (CMRC) Conference, which took place on Wednesday 13th and Thursday 14th September are being uploaded on the Action for M.E. Youtube Channel.
The M.E.Trust is pleased to be a member of and work with a number of collaborative groups including the ALL Party Parliamentary Group [APPG] on ME; the UK CFS/ME Research Collaborative (CMRC); and Forward ME, charities and voluntary organisations invited by the Countess of Mar to meet from time to time.
Following discussion between elected officers, the joint Secretariat, and M.E. charity partners, the All Party Parliamentary Group on M.E. (APPG) will not be re-registered at this time. The reasons for this are set out below, along with how we plan to continue moving M.E. up the political agenda. One of hundreds of informal cross-party groups […]
Below is the Forward ME response to the stakeholder consultation comments form for the “10 year surveillance (2017) – Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy) (2007) NICE guideline CG53” proposal for ‘no update’. It was completed by the Countess of Mar (an ME Trust Patron) on behalf of Forward ME.
Below are the minutes from the Forward ME meeting in June 2017.
Below are the minutes from the Forward ME meeting in March 2017.
We are delighted to have accepted an invitation to join the Steering Group of the UK ME/CFS Biobank. The Biobank is run by CureME and is driving clinical & biomedical research for recognition, diagnosis and treatment of ME/CFS. We are pleased to be working alongside the ME Association and ME Research UK on the Steering […]
Below are the minutes from the Forward ME meeting in December 2016.
Below are the minutes from the Forward ME meeting in October 2016.
Today at the third UK ME/CFS Research Collaborative (CMRC) Annual Science Conference, Prof Julia Newton referenced this and the supporting article published on the BMJ: Reduced cardiac volumes in chronic fatigue syndrome associate with plasma volume but not length of disease: a cohort study
Below are the minutes from the Forward ME meeting in May 2016.