Clinical Vice President of the Royal College of Physicians 2007-10
Mike practised as a Consultant Physician in geriatric and general medicine from 1983 until his recent retirement. From 2009-2013 he was Medical Director for the North West Strategic Health Authority, and Secondary Care Clinician for Central Manchester CCG.
Mike was Clinical Vice President at the Royal College of Physicians from 2007-2010. He is a Fellow of the Royal College of Physicians, Royal College of General Practitioners & American College of Physicians. He is clinical leader at the King’s Fund Patient & Family Centred Care Project, non executive director of Stockport Foundation Trust, and medical advisor to Broughton House in Salford, a charitably funded nursing home.
His family is central to his life. He is married with two adult children, and two grandchildren. During Mike’s spare time he is an exercise freak, especially enjoying walking, swimming, cycling and the garden.
Mike is interested in a ‘whole person’ approach to patient care- ‘We should treat people who are ill and not just the disease’.
He confirms: ‘Sadly CFS/ME does tend to fall through the net- with many patients receiving neither the diagnosis, support nor the information they need. I am delighted to support the ME Trust in its aim to transform the lives of those affected by CFS/ME’.
The Lead Bishop for Healthcare
Bishop James Newcome, the Bishop of Carlisle, is the Lead Bishop for Healthcare in the Church of England and sits in the House of Lords. He is passionate about health care and healing. He developed a special interest in CFS/ME through seeing the devastating effect of the illness on a personal friend, and from meeting people with the illness in his ministry. Bishop James once worked as an ambulance driver and is married to a former health visitor. He has four children, one of whom is training to be a doctor.
He states: ‘So many people with CFS/ME are suffering without being heard or adequately supported. With the right help and support many could benefit from an improved quality of life and some experience physical improvements or even recovery. I am delighted to support the M.E Trust in providing diagnosis, specialist compassionate care and treatment, which can transform lives’.
Chair of Trustees
Head of Partner Capital & Taxation at solicitors Clifford Chance LLP
Philip trained as a Chartered Accountant at Arthur Young McClelland Moores & Co and qualified in May 1998. Since then, he has specialised in international tax working in the profession with Arthur Young and Touche Ross, and then in industry with the Fiat Group and for the last five and half years with Clifford Chance, one of the world’s leading law firms. Philip has experienced at close hand some of the challenges faced, especially for children, when doctors and other professionals run out of surgical solutions. Philip also employed a CFS/ME sufferer to help run a project and was amazed at what can be achieved with the right attitude and determination in the face of a debilitating illness.
Hannah is a former London solicitor. She became ill following a trip to the Far East. She was given a vague diagnosis of ‘probable ME’ by her doctor who also advised her not to tell anyone the diagnosis ‘because there is a stigma attached to it and people will think you have something psychologically wrong with you.’ That was the only advice he gave her. The second doctor said, ‘Well, you probably know more about this than I do. What would you like me to do?’ By the third doctor, she was bed-bound.
Hannah was ill for over 12 years, spending many of those years bedbound and in great pain. Throughout that time her G.P’s advised her that no hospital bed was available on the NHS. She was provided with just 13 weeks of social services care. Her private health insurance did not cover ME. The initial ‘probable diagnosis’ was eventually confirmed many years later. Her GP at that time had feared she may have an undiagnosed brain tumour or MS.
In May 2008 Hannah was told by her GP that she ‘probably’ would not recover. That month she heard about Burrswood Hospital. Within a month of being admitted she was well enough to begin walking along the hospital corridor.
Hannah was invited to speak at Burrswood Hospital to staff, patients and supporters in July 2010. On that occasion she launched the idea of the M.E. Trust to, initially, fund a private room at Burrswood for people suffering from CFS/ME.
Director, Export Finance, Societe Generale
Margaret has spent nearly 30 years in corporate and investment banking, both in the City and in Paris. For most of her career she has focused on trade and export finance, including at Midland Bank (now HSBC), ABN AMRO and Societe Generale, the French bank she joined in 1997. Her work has taken her to Africa, Asia, Central Asia and South America for the financing of capital goods and services required for major projects in various industrial sectors.
In her personal life, Margaret is an admirer and regular supporter of the splendid work of Queenscourt, a very special 12 bed unit hospice in Southport, Merseyside that celebrates its 20th anniversary in 2011.
In the 1990s Margaret was a trustee of the Royal Commonwealth Society for the Blind’s pension fund before moving to work in France. She is currently a director and chairman of two resident management companies in London and Southport.
Solicitor and partner at Taylor Wessing LLP, London
Steven is a partner in the Private Client group and advises across all aspects of charity and trust law, in particular on issues relating to the formation and governance of charities, not for profits, social enterprises and private trusts. His particular specialism is advising on risk management issues and resolving disputes over the governance and administration of not for profit entities.
Steven trained and qualified at Herbert Smith where he worked closely for 10 or so years with John Wood, who in February 2008 was appointed to the board of the Charity Commission.
Steven has advised a wide variety of national and international charities, statutory bodies, and not for profits on their governance and charitable activities and dealing with the Charity Commission on registration and administration issues. In 2007, Steven was invited to join the Charity Law Association’s working party to review the Charity Commission’s consultation document on “Charities and Public Service Delivery”. Steven has written for various professional and industry journals in the UK, for example Charity Finance, and is a regular speaker at seminars/conferences in London and abroad.
Steven is a member of the Charity Law Association and the Association of Contentious Trusts and Probate Specialists.
PR & Communications Consultant
Amy is currently working as an independent consultant developing web and social media communications within the charity sector. From 2002 – 2011, she worked for the publishing group Trinity Mirror plc, as Head of Knowledge Management and was responsible for their Intranet and corporate websites.
Amy studied at Yale University and has a Masters in Fine Art. She worked for a digital publishing start-up in San Francisco before moving to London to join a design consultancy. She has worked for both corporate and charity sector clients which include KPMG, Credit Suisse, MS Society and RNID.
Medical Adviser at Burrswood
Dr Paul trained at St Bartholomew’s Hospital, London, where he qualified in 1976. He spent three years at the Worcester Royal Infirmary, went on to general practice training in Hackney and then to two years’ general practice in East London, before returning home to Australia where he worked at the Adelaide Children’s Hospital from 1983 to 1987. He returned to Worcester to a variety of general practice and paediatric work before coming to Burrswood in 1992. In 1996 he obtained his Diploma in Palliative Medicine.
Dr Paul always had an interest in palliative care as well as paediatrics. Since arriving at Burrswood he has been confronted by many conditions he had never previously encountered, and often by some not in any text books. That was initially the case for CFS/ME. He has over many years learnt a lot both from patients and by meeting the few medics who were gaining an expertise in this area, and has now helped numerous CFS/ME patients.
Chris Philips GradDipPhys;MCSP;SRP
Chris worked at Burrswood from 2003 to 2005, and from 2007 until August 2008. She was the deputy senior physiotherapist and at one time was responsible for the whole department. She has maintained broad general experience, having worked in private practice for over 13 years, and also had specialist physiotherapy training in CFS/ME, hydrotherapy and in prevention of disabilities in Leprosy. She also has teacher training qualifications at City and Guilds level 2.
Chris’s younger daughter had CFS/ME from the age of 14 until 18. At its most severe she was totally confined to bed and both profoundly noise and light sensitive. She was unable to attend school for 2 years. For the final 2 years of her schooling she gradually built up to attending 2 lessons a day. Since then she steadily recovered and is now a personal fitness instructor.
Chris developed CFS/ME herself following a visit to Uganda in April 2001. Her health steadily deteriorated until she was confined to bed. A slow pacing routine enabled her to begin venturing outside again. She had a sudden recovery in October 2002. In 2003 she was employed at Burrswood in a part time capacity.
Due to her personal experiences of being both a patient and a carer, Chris developed an interest in CFS/ME and the role of physiotherapy in its recovery. She read extensively and attended courses, and then produced training materials for the multidisciplinary team at Burrswood, who already had extensive experience in this condition.
Management Accountant for the Church Commissioners 2004-2013