Nicky Handcock is walking 150 miles to help The ME Trust set up desperately needed services for people with ME. She would be delighted to have your sponsorship – and invites you to join her. You can support Nicky on her Virgin Giving page. Could you ‘loop London’ with Nicky and help people with ME? […]
NICE (National Institute for Health and Care Excellence) have announced that they are to update their guidelines for the treatment of ME/CFS (CG53). More information about their decision is is on the NICE website.
Videos from the 2017 CFS/M.E. Research Collaborative (CMRC) Conference, which took place on Wednesday 13th and Thursday 14th September are being uploaded on the Action for M.E. Youtube Channel.
Following discussion between elected officers, the joint Secretariat, and M.E. charity partners, the All Party Parliamentary Group on M.E. (APPG) will not be re-registered at this time. The reasons for this are set out below, along with how we plan to continue moving M.E. up the political agenda. One of hundreds of informal cross-party groups […]
Researchers at the Stanford University School of Medicine have linked chronic fatigue syndrome to variations in 17 immune-system signalling proteins, or cytokines, whose concentrations in the blood correlate with the disease’s severity. The findings provide evidence that inflammation is a powerful driver of this mysterious condition, whose underpinnings have eluded researchers for 35 years. Read […]
Today the Journal of Health Psychology has published a special edition entitled “The Pace Trial – The Making of a Medical Scandal”. In the introduction of the special edition, David Marks, Editor of the JHP states: We are proud that this issue marks a special contribution by the Journal of Health Psychology to the literature concerning […]
Below is the Forward ME response to the stakeholder consultation comments form for the “10 year surveillance (2017) – Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy) (2007) NICE guideline CG53” proposal for ‘no update’. It was completed by the Countess of Mar (an ME Trust Patron) on behalf of Forward ME.
From the new paper: The EUROMENE network of European researchers and clinicians aims to promote cooperation and advance research on ME/CFS. To improve diagnosis and facilitate the analysis of clinical trials surrogate markers are urgently needed. As a first step for developing such biomarkers for clinical use a database of active biomarker research in Europe […]
A trailer for the Unrest documentary has been released which you can watch below. About Unrest: Jennifer Brea is working on her PhD at Harvard and about to marry the love of her life when she’s struck down by a mysterious fever that leaves her bedridden. When doctors tell her “it’s all in her head,” she […]
Below are the minutes from the Forward ME meeting in June 2017.
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