Trustees of The M.E. Trust

Dr Gareth Tuckwell Dip. Pall. Med (Univ of Wales), MRCGP

Dr Gareth Tuckwell Dip. Pall. Med (Univ of Wales), MRCGP

Chairman

Gareth was Chief Executive Officer of Burrswood Hospital, Kent from 2007 for a five-year term, Clinical Director of Hospice in the Weald from 2003 to 2007, and Regional Director of Macmillan Cancer Support from 2000 to 2003.

Gareth was a Trustee of Macmillan Cancer Support from 2003 to 2013 and a Trustee and subsequently chairman of Friends of Vellore (UK) from 2011 to 2016. Gareth was also Medical Director of Burrswood Hospital from 1986 to 1999. He is a Vice-President of Phyllis Tuckwell Hospice Care and is a member of the Sanctuary Group Board; he also chairs the Sanctuary Care Boards. He brings invaluable experience in working with charities, in clinical leadership, care delivery and clinical governance to The M.E. Trust, in addition to a deep understanding of the challenges affecting people with M.E., and their families.

    Vanessa Bailey

    Vanessa Bailey

    Vanessa has over 30 years’ experience of working in Risk within the banking industry. Her career has spanned both Europe and Asia. Vanessa is Senior Advisor to the Chief Risk Officer at RBS. Immediately prior to this she was Group Chief Credit Officer, focusing on developing the right balance between customer, doing the right thing for the customer and risk taking that aligns with the bank's appetite and safeguarding the financial soundness of the bank.

    Vanessa has worked for a number of financial institutions before joining RBS, including Credit Suisse, UBS, INGBarings and Westpac Banking Corporation. Senior roles include regional/divisional chief credit officer and regional chief risk officer.

    Early in 2016 Vanessa was diagnosed with moderate ME/CFS and fibromyalgia which resulted in her absence from RBS for a little under a year. She has returned to work on a full time basis and is passionate about helping others with the illness.

      Philip Courtney

      Philip is Head of Partner Capital & Taxation at solicitors Clifford Chance LLP. He trained as a Chartered Accountant at Arthur Young McClelland Moores & Co and qualified in May 1998. Philip has specialised in international tax working in the profession with Arthur Young and Touche Ross, and then in industry with the Fiat Group and since 2005 with Clifford Chance, one of the world’s pre-eminent law firms.

      Philip has experienced at close hand some of the challenges faced, especially for children, when doctors and other professionals run out of surgical solutions. Philip employed a CFS/ME sufferer to help run a project and was amazed at what can be achieved with the right attitude and determination in the face of a debilitating illness.

        Rollo Hope

        Rollo Hope

        Rollo has worked in Parliament for the last six years and is currently Chief of Staff to a senior MP. He studied Theology and Religious Studies at Bristol University and was a youth and student worker after graduation.

        Rollo had ME from the age of 15-25 and so has personal experience of the immense difficulties people face who suffer from this debilitating illness. He endured periods of being bed and house- bound but managed to complete his school and university education despite considerable challenges.

        He is delighted to have been asked to join The M.E. Trust board and to assist in the work to help those with ME lead an active life once again.

          Colin Paine

          Colin Paine

          Colin is a Detective Chief Superintendent and currently the Head of Professional Standards for Thames Valley Police. He has worked across a range of roles in policing including being head of CID, head of Protecting Vulnerable People and a Local Police Area Commander. He has a first in Philosophy and Theology from Oxford where he studied from 96 to 99 and more recently has an MSt in Criminology from Cambridge where he studied from 2010-11.

          Colin developed ME in 2017. After a considerable period of being housebound and unable to work, he has returned to work gradually and built back up to working full time – albeit he has to continue to manage his health carefully as he discusses here.

          Colin passionately believes that there is the promise of hope for those suffering with ME, which is why he is delighted to be part of board for the ME Trust.

            Dr Paul Worthley

            Dr Paul Worthley

            Our trustee and medical advisor, Dr Paul Worthley has over 20 years’ experience of helping people with ME/CFS.

            Dr Paul trained at St Bartholomew’s Hospital, London, where he qualified in 1976. He spent three years at the Worcester Royal Infirmary, went on to general practice training in Hackney and then to two years’ general practice in East London, before returning home to Australia where he worked at the Adelaide Children’s Hospital from 1983 to 1987. He returned to Worcester to a variety of general practice and paediatric work before moving to Burrswood Hospital in Kent in 1992. In 1996 he obtained his Diploma in Palliative Medicine.

            Working at Burrswood Hospital for 24 years, Dr Paul was resident Senior Physician until 2014 and for the last two years ran an outpatient clinic for people with ME/CFS and related illnesses. Working with physiotherapists and, more recently, an occupational therapist, he pioneered a whole person and individually tailored approach to caring for people with this spectrum of disease. which has benefited hundreds of patients. The value of his approach was confirmed by a Kent University study.

            Dr Paul has over many years learnt a lot both from patients and by meeting the few medics who work in this field. He has gained an expertise in the area of ME/CFS and has helped hundreds of ME/CFS patients.

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