The ME Trust supports people with ME/CFS, their families and immediate community of carers with a highly experienced multi-disciplinary team.
We offer individually tailored whole person care. That means we seek to support you in whatever way is right for you as an individual physically, or emotionally or spiritually.
ME has a wide spectrum of severity and symptoms, and there is no one size fits all.
Our multi-disciplinary team includes a doctor, physiotherapist, counsellors and chaplains.
Every member of the team has experience in journeying alongside those with ME, acknowledging that each person has individual needs and stories as they endeavour to find health again. We do not offer a quick fix but are committed to helping each person to enable a fuller and richer way of life. The team is led by Dr Paul Worthley, our ME Trust medical advisor and trustee, who has over 25 years’ experience of helping hundreds of people with ME/CFS at all levels of severity.More About the Clinical Team
We offer support in a variety of ways:
- Consultations by phone, Skype, email;
- Home visits (depending on location);
- Outpatients appointments.
Our monthly Outpatient Clinic takes place at Crowborough Hospital on the 3rd Friday of every month. Dates for 2019 are: 21st June, 19th July, 16th August,
20th September, 18th October, 15th November, 20th December.
Crowborough Hospital is located at Southview Road, Crowborough, East Sussex, TN6 1HB. There is free parking available. View further directions and a map to Crowborough Hospital.
Details of charges, and a link for making a booking/enquiring about a consultation, are set out below.
Consultations and Home Visits
Due to the overwhelming demand for medical services, we regret that Dr Paul Worthley is unable to accept new patients for telephone consultations at the moment. He will of course continue to provide ongoing support and advice to all patients who are currently listed. Please note that he is able to offer new patient appointments at the out-patient clinic at Crowborough. We are actively seeking to recruit more doctors, and welcome enquiries from physicians interested in working with us. Other members of the clinical team are available for appointments.
A physiotherapy consultation with Sue Pople, by phone, is £20 for a 15 minute call. A home visit, usually within the south/south-east of England, would be from £180.
Counselling or emotional support is £20 for up to half an hour. Further information is available here.
Spiritual accompaniment with Rev David Flagg or Elizabeth White is £40 and £35 per hour respectively. Sessions can be shorter than an hour.
|Initial Appointments||Follow up appointments|
|Doctor: £150||Doctor: £100|
|Physiotherapist £90||Physiotherapist: £60|
If you are in financial need please enquire about bursary support.
Book an Appointment or Make an Enquiry about a Consultation
“The ME Trust has provided me with ongoing expert support with managing my ME…I’ve had
regular access to an understanding GP who has given me sensible and helpful advice
covering medication, pacing and symptom management. It’s such a relief to be able to talk
to a clinician who actually understands the condition… I’ve not had a miracle recovery but
thanks to the ME Trust I now feel hopeful for the future where I had once only felt despair.”
“Sue the physio is brilliant – so helpful, understanding and supportive …”