The ME Trust supports people with ME/CFS, their families and immediate community of carers with a highly experienced multi-disciplinary team.
We offer individually tailored whole person care. That means we seek to support you in whatever way is right for you as an individual physically, or emotionally or spiritually.
ME has a wide spectrum of severity and symptoms, and there is no one size fits all.
Our multi-disciplinary team includes a doctor, a nurse, physiotherapist, counsellors and chaplains.
Every member of the team has experience in journeying alongside those with ME, acknowledging that each person has individual needs and stories as they endeavour to find health again. We do not offer a quick fix but are committed to helping each person to enable a fuller and richer way of life. The team is led by Dr Paul Worthley, our ME Trust medical advisor, who has over 25 years’ experience of helping hundreds of people with ME/CFS at all levels of severity.More About the Clinical Team
We offer support in a variety of ways:
- Consultations by phone, Skype, email;
- Home visits (depending on location);
- Outpatients appointments.
Our monthly Outpatient Clinic takes place at Crowborough Hospital on the 3rd Friday of every month.
Dates for 2020 are: 17th January, 21st February, 20th March, 17th April, 15th May, 19th June, 17th July, 21st August, 18th September, 16th October, 20th November and 18th December.
Crowborough Hospital is located at Southview Road, Crowborough, East Sussex, TN6 1HB. There is free parking available. View further directions and a map to Crowborough Hospital.
Details of charges, and a link for making a booking/enquiring about a consultation, are set out below.
Fees (from 1st January 2020)
All initial consultations are free of charge for a short call (usually 15 – 20 minutes)
Physiotherapy – A physiotherapy consultation by phone is £22 for a 15 minute call (£44 for 30 minutes). A home visit, within South-East England, costs from £198.
Nurse – A nurse consultation by phone is £27.50 for a 30 minute call. A home visit, within South East England, costs from £165.
Counselling or emotional support is £22 for up to 30 minutes (£44 per hour). Further information is available here.
Spiritual accompaniment is £44 per hour. Sessions can be shorter than an hour.
Outpatients Clinic Fees (from 1st January 2020)
|Initial Appointments||Follow up appointments|
|Doctor: £165||Doctor: £110|
|Physiotherapist: £99||Physiotherapist: £66|
|Nurse: £66||Nurse: £66|
If you are in financial need please enquire about bursary support.
Book an Appointment or Make an Enquiry about a Consultation
“The ME Trust has provided me with ongoing expert support with managing my ME…I’ve had
regular access to an understanding GP who has given me sensible and helpful advice
covering medication, pacing and symptom management. It’s such a relief to be able to talk
to a clinician who actually understands the condition… I’ve not had a miracle recovery but
thanks to the ME Trust I now feel hopeful for the future where I had once only felt despair.”
“Sue the physio is brilliant – so helpful, understanding and supportive …”