Categories Archives: Trustees

Caroline Kingdon

Caroline originally trained as a State Registered nurse at Guy’s Hospital, later specialising in hospice care before working as a nurse practitioner.

She has been involved with people with ME/CFS and their families since 2013, both as partners in biomedical research and as donors to the UK ME/CFS Biobank. A privilege of her position has been to visit those participants most severely affected by ME/CFS at home, from whom she has learned much about the disease and the many challenges it brings. She is dismayed not only by the misery experienced by people with severe ME/CFS, but also by the ongoing stigma around ME/CFS which so often results in alienation from statutory medical services. Latterly, she has been contributing to the revision of the NICE Guidelines for ME/CFS as a committee member.

She feels strongly about the need for compassion in all dealings with people with a disease with no biomarker or effective treatment, and is hopeful for greater health equity for people with ME/CFS in the future.

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    Colin Paine

    Colin is a Detective Chief Superintendent and currently the Head of Professional Standards for Thames Valley Police. He has worked across a range of roles in policing including being head of CID, head of Protecting Vulnerable People and a Local Police Area Commander. He has a first in Philosophy and Theology from Oxford where he studied from 96 to 99 and more recently has an MSt in Criminology from Cambridge where he studied from 2010-11.

    Colin developed ME in 2017. After a considerable period of being housebound and unable to work, he has returned to work gradually and built back up to working full time – albeit he has to continue to manage his health carefully as he discusses here.

    Colin passionately believes that there is the promise of hope for those suffering with ME, which is why he is delighted to be part of board for the ME Trust.

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      Rollo Hope

      Chairman

      Rollo has worked in Parliament for the last six years and is currently Chief of Staff to a senior MP. He studied Theology and Religious Studies at Bristol University and was a youth and student worker after graduation.

      Rollo had ME from the age of 15-25 and so has personal experience of the immense difficulties people face who suffer from this debilitating illness. He endured periods of being bed and house- bound but managed to complete his school and university education despite considerable challenges.

      He is delighted to have been asked to join The M.E. Trust board and to assist in the work to help those with ME lead an active life once again.

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        Philip Courtney

        Philip is Head of Partner Capital & Taxation at solicitors Clifford Chance LLP. He trained as a Chartered Accountant at Arthur Young McClelland Moores & Co and qualified in May 1998. Philip has specialised in international tax working in the profession with Arthur Young and Touche Ross, and then in industry with the Fiat Group and since 2005 with Clifford Chance, one of the world’s pre-eminent law firms.

        Philip has experienced at close hand some of the challenges faced, especially for children, when doctors and other professionals run out of surgical solutions. Philip employed a CFS/ME sufferer to help run a project and was amazed at what can be achieved with the right attitude and determination in the face of a debilitating illness.

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