Caroline originally trained as a State Registered nurse at Guy’s Hospital, later specialising in hospice care before working as a nurse practitioner.
She has been involved with people with ME/CFS and their families since 2013, both as partners in biomedical research and as donors to the UK ME/CFS Biobank. A privilege of her position has been to visit those participants most severely affected by ME/CFS at home, from whom she has learned much about the disease and the many challenges it brings. She is dismayed not only by the misery experienced by people with severe ME/CFS, but also by the ongoing stigma around ME/CFS which so often results in alienation from statutory medical services. Latterly, she has been contributing to the revision of the NICE Guidelines for ME/CFS as a committee member.
She feels strongly about the need for compassion in all dealings with people with a disease with no biomarker or effective treatment, and is hopeful for greater health equity for people with ME/CFS in the future.