Research Conference in Newcastle – 4 November 2014

The ME Association and ME North East are be co-sponsoring a research conference at Gosforth Civic Hall, Newcastle upon Tyne, on Tuesday, November 4th 2014. The event will showcase the varied work of the ME/CFS research unit at Newcastle University and also feature a talk by Professor Stephen Todryk of Northumbria University who is leading […]

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Findings of brain anomalies may shed light on chronic fatigue | San Francisco Chronicle

Stanford researchers have found some striking abnormalities in the brains of people with chronic fatigue syndrome, a frustrating and debilitating condition for which there is no known cause and no treatment that’s widely effective. The findings, published Wednesday in the journal Radiology, could improve diagnosis and spark new scientific understanding of the disease. Perhaps even […]

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Thousands with degenerative conditions classified as ‘fit to work in future’ – despite no possibility of improvement

More than a third of people with degenerative conditions such as Parkinson’s and multiple sclerosis are having their benefits slashed because the Department for Work and Pensions deems they will recover enough to look for work. Thousands of those with diseases that only worsen with time – and who have become too ill to work […]

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NICE change their classification of ME/CFS

Our Patron, the Countess of Mar, wrote last week to Professor Baker, Director at NICE, expressing concerning at NICE listing CFS as a Mental Health and Behavioural Condition as well as a Neurological Condition. In her role as Chair of Forward ME, the Countess pointed out that the Department of Health had consistently confirmed that […]

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Neurological survey published

The Neurological Alliance survey findings and recommendations Sept 2014 – ‘Is localism working for people with neurological conditions’ report has just been published. Highlights from the report include: ‘Neurological conditions have historically been poorly prioritised in the health and social care system. Neurological conditions are unique compared to other long term conditions – they are […]

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Dr Shepherd

Dr Charles Shepherd

Dr Charles Shepherd, trustee and medical advisor to the ME Association, accepted our invitation to visit Burrswood and hear about care and treatment of CFS/ME patients at the hospital. Dr Shepherd has had CFS/ME himself for many years and wrote the highly regarded book ‘Living with ME’. He was interested to learn more of Burrswood’s care […]

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