Human geneticist Mario Capecchi, who won Nobel Prize in 2007, and 1962 Nobel Laureate James Watson have joined the Scientific Advisory Board of the US-based Open Medicine Foundation, set up to drive research into neuro-immune diseases including chronic fatigue syndrome, ME, Fibromyalgia, and Lyme Disease.
The ME Association and ME North East are be co-sponsoring a research conference at Gosforth Civic Hall, Newcastle upon Tyne, on Tuesday, November 4th 2014. The event will showcase the varied work of the ME/CFS research unit at Newcastle University and also feature a talk by Professor Stephen Todryk of Northumbria University who is leading […]
Stanford researchers have found some striking abnormalities in the brains of people with chronic fatigue syndrome, a frustrating and debilitating condition for which there is no known cause and no treatment that’s widely effective. The findings, published Wednesday in the journal Radiology, could improve diagnosis and spark new scientific understanding of the disease. Perhaps even […]
More than a third of people with degenerative conditions such as Parkinson’s and multiple sclerosis are having their benefits slashed because the Department for Work and Pensions deems they will recover enough to look for work. Thousands of those with diseases that only worsen with time – and who have become too ill to work […]
On Saturday 18th October over 250 people enjoyed a fundraising concert by Stuart Townend in Maidenhead. A huge thank you to Stuart and his team, to all at St Mary’s Church, and everyone who contributed to this wonderful evening.
Our Patron, the Countess of Mar, wrote last week to Professor Baker, Director at NICE, expressing concerning at NICE listing CFS as a Mental Health and Behavioural Condition as well as a Neurological Condition. In her role as Chair of Forward ME, the Countess pointed out that the Department of Health had consistently confirmed that […]
A petition calling for a dedicated clinic for ME sufferers in South Wales has been presented to the Welsh Assembly by an ME support group. The ME Support in Glamorgan (MESIG) group, which has members throughout Barry and the Vale, are calling for a much needed specialist clinic and health team in the area to […]
We are very grateful to Action for ME for giving the ME Trust permission to publish details of the conference reports. (more…)
The Neurological Alliance survey findings and recommendations Sept 2014 – ‘Is localism working for people with neurological conditions’ report has just been published. Highlights from the report include: ‘Neurological conditions have historically been poorly prioritised in the health and social care system. Neurological conditions are unique compared to other long term conditions – they are […]
Dr Charles Shepherd, trustee and medical advisor to the ME Association, accepted our invitation to visit Burrswood and hear about care and treatment of CFS/ME patients at the hospital. Dr Shepherd has had CFS/ME himself for many years and wrote the highly regarded book ‘Living with ME’. He was interested to learn more of Burrswood’s care […]