Lord Freud, the Department for Work and Pensions, provided the following answer to the Countess’s written parliamentary question (HL2998): Question: To ask Her Majesty’s Government how many claimants for Employment Support Allowance who have degenerative conditions for which there is no possibility of improvement have been placed in the Work-Related Activity Group; how many have […]
Film maker Natalie Boulton has arranged for the film ‘Voices from the Shadows’ to be available to watch for free until the end of the year – on Vimeo – by entering a promo code of VOICES after clicking the “rent for $3” button. (more…)
Patients with chronic fatigue syndrome are accustomed to disappointment. The cause of the disorder remains unknown; it can be difficult to diagnose, and treatment options are few. Research suggesting that an infection from a mouse virus may cause it raised hopes among patients a few years ago, but the evidence fell apart under closer scrutiny. […]
This small study used a type of MRI scan to examine whether there were any differences in the brain volume and structure of 15 people with CFS, to use the studies own terminology, as compared with 14 controls. (more…)
An article appeared in The Independent on 23 October 2014 entitled, “Thousands with degenerative conditions classified as ‘fit to work in future’ – despite no possibility of improvement”. (more…)
Human geneticist Mario Capecchi, who won Nobel Prize in 2007, and 1962 Nobel Laureate James Watson have joined the Scientific Advisory Board of the US-based Open Medicine Foundation, set up to drive research into neuro-immune diseases including chronic fatigue syndrome, ME, Fibromyalgia, and Lyme Disease.
The ME Association and ME North East are be co-sponsoring a research conference at Gosforth Civic Hall, Newcastle upon Tyne, on Tuesday, November 4th 2014. The event will showcase the varied work of the ME/CFS research unit at Newcastle University and also feature a talk by Professor Stephen Todryk of Northumbria University who is leading […]
Stanford researchers have found some striking abnormalities in the brains of people with chronic fatigue syndrome, a frustrating and debilitating condition for which there is no known cause and no treatment that’s widely effective. The findings, published Wednesday in the journal Radiology, could improve diagnosis and spark new scientific understanding of the disease. Perhaps even […]
More than a third of people with degenerative conditions such as Parkinson’s and multiple sclerosis are having their benefits slashed because the Department for Work and Pensions deems they will recover enough to look for work. Thousands of those with diseases that only worsen with time – and who have become too ill to work […]
On Saturday 18th October over 250 people enjoyed a fundraising concert by Stuart Townend in Maidenhead. A huge thank you to Stuart and his team, to all at St Mary’s Church, and everyone who contributed to this wonderful evening.